- Acid Maltase
Deficiency Association of Australia
2/1 Parnee Street
Swan Hill VIC 3585
Telephone: +61 (0)3 5032
4093
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- Acid Maltase Deficiency-- A Brief Summary
- AMDA's Advisory Board
2004-2005 Initiatives for Pompe's Disease
- 2005 AGSD-UK Conference Report
- Listing of All Clinical Studies for Pompe's Disease--(Type in
"Pompe")
- Information on Late-onset screening study now available
IPA Patient Questionnaire (Still in progress)
- Article on the Results of the IPA/Erasmus Patient
- Questionnaire
- Second Article on the Results of the IPA/Erasmus Patient Questionnaire
- Third Article on the Results of the IPA/Erasmus Patient Questionnaire
- Physician's Guide to Pompe's Disease--Free Pamphlet from NORD
- AMDA's Pompe's Disease Communication Program
- AMDA's Pompe Mentoring Program
- Respiratory Support Information
Flying with a Ventilator in the United States
- Pompe Center of the Erasmus Medical Center Rotterdam, The Netherlands-- (Contains mutation database)
- Meet the Patients--(Story of a Patient in the Clinical Trials)
- AMDA Patient Registry
Research Publications on Pompe's Disease
- Research Developments
- Scientific Board Formed
Research Highlights
- AMDA Projects
AMDA Patient Conference-September 2001
- Clinical Trials
...more
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See
Support Group Below 